Blindaversary

It seems like a lifetime ago.  At twenty-two years, I suppose it is a lifetime.  The anniversary almost slipped up on me this year.  But, this uncanny and often irritating ability I have to remember dates and even days of the week they happened—always pops up sooner or later.  This year, September 25^th falls on a Wednesday, just as it did in 1991.

The week before, I’d had a dye test where they photographed the blood vessels in back of my eye after a yellow dye was injected into a vein in one of my arms.  Then I nervously waited for them to call with the results.

They called me at work that Wednesday morning.  “You have diabetic retinopathy.  If you don’t have laser treatments right away you could lose all your vision.” 

Outside my office, my co-workers went about their business.  If someone’s world comes crashing down around them and nobody else hears it, did it really happen?  Apparently so. 

I needed air.  I needed space.  My office was closer to the back of the building.  The next thing I knew, I was standing in the alley, trying to catch my breath.  The intense Austin sun felt like it would cook me alive.

Home.  Just get home.  Now.

I found my way to the front parking lot, got in my truck, and drove to my apartment.

What am I going to do now? 

I had only been there a few months.  My health insurance wasn’t due to start until October 1^st.  Just a couple of months earlier, I discovered my kidneys were failing.  This news was like a hammer driving a nail all the way in.  Any pretense I had that maybe, just maybe I could stay in Austin and make it all work was gone.  After Tampa, Kansas City, and Dallas, I’d finally a place—the place—I wanted to stay.  It was so much like the quirky college town where I grew up but with big city amenities.  My paychecks were increasing.  After laying the groundwork, the accounts I’d opened were really starting to produce sales.  Life was on a steady upswing.  Well, except for failing kidneys.

My parents were anxiously waiting to find out the results of the test.  I called them and we made plans for them to drive to Austin the first weekend in October to help me pack up and move back in with them.  Life as I knew was coming to an end, but at least I wouldn't have to face it alone.  Still, as the oldest kid, I felt guilt at being a burden on them.

Since then, some of my worst nightmares came true.  Some amazing blessings rescued me.  I’ve had to pick myself up and go forward countless times.

When I want to torture myself, I try to imagine what life would have been like if my health hadn’t failed and I’d been able to stay in Austin.  I’ve been back twice—in 1996 and 2001.  Each time, it was so much bigger than before.  From what I hear, it’s much more expensive and resembles Dallas and Houston more than the place I remember.

There are two things I was good at then and, thanks to professional guidance and practice, am even better at now.  Writing and visual art.  There are some gifts that vision loss can dull, but never take completely away as long as there’s some vision left. 

In the months that followed me leaving my job, selling most of my things, and returning to Arkansas, I had plenty of time to sit around my parents’ house and ponder the future.  There was one thing I vowed to do over and over again: surpass the expectations of people who thought I wasn’t capable of much anymore.  I approached my new reality with the same tenacity I’d used to support myself in college and graduate in four years, even after changing majors and watching some of my friends give up. 

I run into trouble when I expect things to be as easy as they are for people who can see fine.  Sometimes it turns to resentment, which is as unproductive and unhealthy as guilt—another emotion that invades my mind when I remember the mistakes I made as a young diabetic in my teens and twenties.

On this day in 1991, the sense of fear and loss had me wondering if I would ever accomplish anything.  I assumed that my skills and abilities would be frozen where they were then, as a 27 year-old who had no idea what he really wanted to do with his life.

Back in 1991, it would have helped me to know that before I was halfway through my forties, it would be the most productive decade of my life (so far).

In 1991 it would have given me such relief to know that by the end of that decade, I would no longer be diabetic.

In 1991 I would have been overjoyed to know that ten years later, after eye hemorrhages, invasive procedures and procedures, I would create a large piece of art like this.  

 Visit Jim's web site JimFairbanks.net

The Ghost of Vision Past: The Pain of Remembering

Over the weekend I attended a conference in Memphis.  It was the first time I’d been there since 2001, when I lived in Little Rock.  Some friends invited me along for an overnighter including a show at the beautifully restored Orpheum Theater, followed by some nightlife fun.  If you like architecture and you get a chance to see a show there, do it!  Even if you’re not interested in the show, it’s worth it.  I don’t get over there often.  It’s at least a five-hour drive from this part of the Ozarks.

It was one of those conferences with “breakout” sessions going on in different meeting rooms.  You look at a schedule and decide which one looks like your best bet or take a break if none appeals to you.  You can mingle in a common area and nibble the finger food set out on a long table.  Sounds simple enough, right?

It was simple for me back when my vision was better.  Now I have to use a high-tech magnifier (it cost $600) to read the schedule and get help finding the room I needed.  Finding a seat wasn’t hard, but seeing Powerpoint presentations was impossible.  Sometimes I could tell what the speaker was was talking about on the screen, other times I couldn’t.  I needed help identifying food set out on the snack table and again during the buffet-style meals.  People were happy to help, but it made me self-conscious to slow down a line of hungry people behind me.  I made it a point to get in line early, not only because view a buffet line as prey, but also so I could find an unoccupied seat without having to roam around a crowded dining room with a plateful of food.

While making polite conversations with others at my table, I also had to identify food, spear it with my fork, and mind my table manners.  At one meal, the salad was overloaded with olives, which I hate.  I had to eat several because they were In my mouth before I knew what they were.  By the end, my food was jumbled up together on the plate and I thought back on the brief phase I went through when I was a kid, when I didn’t want any of the food to touch each other.

But, the biggest and most isolating change that happened when my vision wosened in 2003 was losing the ability to recognize faces and expressions more than a couple of feet away.  Because of that, I can be very alone in a crowd—even when people are extremely warm and friendly, like they were last weekend.

I have an excellent sense of direction, an internal compass that almost never fails.  But, in order for it to work, I need to get a good look at my surroundings.  To get to my room from the elevator, I had to make a couple of sharp turns and it left me disoriented, then frustrated, then angry because I can remember when things were easier.  Sunday morning, I wanted breakfast and remembered the nearest restaurant was across a four-lane street and was buffet-style.  Not worth the risk.  I found a small room on my floor with vending machines.  The one with food was framed in bright lights so I had to lean in and squint even more than I usually do.  This particular machine had a flashing keypad, though.  The bulb didn’t have a short.  It was designed to light up a row at a time in quick succession, giving it the look of a slot machine that paid winners in sweet and salty snacks.  Do they really need to lure people—particularly Americans—to a vending machine with flashing lights? 

I gave up and went back to my room, glad I had snagged a cookie from a table the day before and saved it.

I wanted to look around at the urban landscape of a bigger city, even if we didn’t drive through any particualry interesting parts of it.  I wanted to be able to navigate the common areas without it feeling like an expedition.  I wanted to find the Men’s Room all by myself like a big boy.

Yes, people find me inspiring, and I hope that continues.  I’m comfortable around the house and around the town where I live.  Being in unfamiliar places is more work for me now.  I work harder to see things.  I have to commit things to memory faster.  I come back from a two-day conference exhausted, physically and emotionally—because I can remember when life was much easier.  I was legally blind before, but barely.  I got around with little trouble.  Even my friends occasionally forgot I had vision problems.

Today, I’m starting to feel like myself again.  I’m at the brink of an exciting future that includes speaking engagements, a published memoir, an inspirational web site, a YouTube channel, and probably more income to go with it all.  I’m focusing on that as best I can, letting The Ghost of Accomplishments Future save me from The Ghost of Vision Past.