It was one of those conferences with “breakout” sessions
going on in different meeting rooms. You
look at a schedule and decide which one looks like your best bet or take a
break if none appeals to you. You can
mingle in a common area and nibble the finger food set out on a long
table. Sounds simple enough, right?
It was simple for me back when my vision was better. Now I have to use a high-tech magnifier (it
cost $600) to read the schedule and get help finding the room I needed. Finding a seat wasn’t hard, but seeing
Powerpoint presentations was impossible.
Sometimes I could tell what the speaker was was talking about on the
screen, other times I couldn’t. I needed
help identifying food set out on the snack table and again during the
buffet-style meals. People were happy to
help, but it made me self-conscious to slow down a line of hungry people behind
me. I made it a point to get in line
early, not only because view a buffet line as prey, but also so I could find an
unoccupied seat without having to roam around a crowded dining room with a
plateful of food.
While making polite conversations with others at my table, I
also had to identify food, spear it with my fork, and mind my table
manners. At one meal, the salad was
overloaded with olives, which I hate. I
had to eat several because they were In my mouth before I knew what they
were. By the end, my food was jumbled up
together on the plate and I thought back on the brief phase I went through when
I was a kid, when I didn’t want any of the food to touch each other.
But, the biggest and most isolating change that happened
when my vision wosened in 2003 was losing the ability to recognize faces and
expressions more than a couple of feet away.
Because of that, I can be very alone in a crowd—even when people are
extremely warm and friendly, like they were last weekend.
I have an excellent sense of direction, an internal compass
that almost never fails. But, in order
for it to work, I need to get a good look at my surroundings. To get to my room from the elevator, I had to
make a couple of sharp turns and it left me disoriented, then frustrated, then
angry because I can remember when things were easier. Sunday morning, I wanted breakfast and
remembered the nearest restaurant was across a four-lane street and was
buffet-style. Not worth the risk. I found a small room on my floor with vending
machines. The one with food was framed
in bright lights so I had to lean in and squint even more than I usually do. This particular machine had a flashing
keypad, though. The bulb didn’t have a
short. It was designed to light up a row
at a time in quick succession, giving it the look of a slot machine that paid
winners in sweet and salty snacks. Do
they really need to lure people—particularly Americans—to a vending machine with
flashing lights?
I gave up and went back to my room, glad I had snagged a
cookie from a table the day before and saved it.
I wanted to look around at the urban landscape of a bigger
city, even if we didn’t drive through any particualry interesting parts of
it. I wanted to be able to navigate the
common areas without it feeling like an expedition. I wanted to find the Men’s Room all by myself
like a big boy.
Yes, people find me inspiring, and I hope that
continues. I’m comfortable around the
house and around the town where I live.
Being in unfamiliar places is more work for me now. I work harder to see things. I have to commit things to memory
faster. I come back from a two-day
conference exhausted, physically and emotionally—because I can remember when
life was much easier. I was legally
blind before, but barely. I got around
with little trouble. Even my friends occasionally
forgot I had vision problems.
Today, I’m starting to feel like myself again. I’m at the brink of an exciting future that
includes speaking engagements, a published memoir, an inspirational web site, a
YouTube channel, and probably more income to go with it all. I’m focusing on that as best I can, letting
The Ghost of Accomplishments Future save me from The Ghost of Vision Past.
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