The Ghost of Vision Past: The Pain of Remembering

Over the weekend I attended a conference in Memphis.  It was the first time I’d been there since 2001, when I lived in Little Rock.  Some friends invited me along for an overnighter including a show at the beautifully restored Orpheum Theater, followed by some nightlife fun.  If you like architecture and you get a chance to see a show there, do it!  Even if you’re not interested in the show, it’s worth it.  I don’t get over there often.  It’s at least a five-hour drive from this part of the Ozarks.

It was one of those conferences with “breakout” sessions going on in different meeting rooms.  You look at a schedule and decide which one looks like your best bet or take a break if none appeals to you.  You can mingle in a common area and nibble the finger food set out on a long table.  Sounds simple enough, right?

It was simple for me back when my vision was better.  Now I have to use a high-tech magnifier (it cost $600) to read the schedule and get help finding the room I needed.  Finding a seat wasn’t hard, but seeing Powerpoint presentations was impossible.  Sometimes I could tell what the speaker was was talking about on the screen, other times I couldn’t.  I needed help identifying food set out on the snack table and again during the buffet-style meals.  People were happy to help, but it made me self-conscious to slow down a line of hungry people behind me.  I made it a point to get in line early, not only because view a buffet line as prey, but also so I could find an unoccupied seat without having to roam around a crowded dining room with a plateful of food.

While making polite conversations with others at my table, I also had to identify food, spear it with my fork, and mind my table manners.  At one meal, the salad was overloaded with olives, which I hate.  I had to eat several because they were In my mouth before I knew what they were.  By the end, my food was jumbled up together on the plate and I thought back on the brief phase I went through when I was a kid, when I didn’t want any of the food to touch each other.

But, the biggest and most isolating change that happened when my vision wosened in 2003 was losing the ability to recognize faces and expressions more than a couple of feet away.  Because of that, I can be very alone in a crowd—even when people are extremely warm and friendly, like they were last weekend.

I have an excellent sense of direction, an internal compass that almost never fails.  But, in order for it to work, I need to get a good look at my surroundings.  To get to my room from the elevator, I had to make a couple of sharp turns and it left me disoriented, then frustrated, then angry because I can remember when things were easier.  Sunday morning, I wanted breakfast and remembered the nearest restaurant was across a four-lane street and was buffet-style.  Not worth the risk.  I found a small room on my floor with vending machines.  The one with food was framed in bright lights so I had to lean in and squint even more than I usually do.  This particular machine had a flashing keypad, though.  The bulb didn’t have a short.  It was designed to light up a row at a time in quick succession, giving it the look of a slot machine that paid winners in sweet and salty snacks.  Do they really need to lure people—particularly Americans—to a vending machine with flashing lights? 

I gave up and went back to my room, glad I had snagged a cookie from a table the day before and saved it.

I wanted to look around at the urban landscape of a bigger city, even if we didn’t drive through any particualry interesting parts of it.  I wanted to be able to navigate the common areas without it feeling like an expedition.  I wanted to find the Men’s Room all by myself like a big boy.

Yes, people find me inspiring, and I hope that continues.  I’m comfortable around the house and around the town where I live.  Being in unfamiliar places is more work for me now.  I work harder to see things.  I have to commit things to memory faster.  I come back from a two-day conference exhausted, physically and emotionally—because I can remember when life was much easier.  I was legally blind before, but barely.  I got around with little trouble.  Even my friends occasionally forgot I had vision problems.

Today, I’m starting to feel like myself again.  I’m at the brink of an exciting future that includes speaking engagements, a published memoir, an inspirational web site, a YouTube channel, and probably more income to go with it all.  I’m focusing on that as best I can, letting The Ghost of Accomplishments Future save me from The Ghost of Vision Past.

Savant? Or Just Blind Memory?

Sometimes I forget how hard it is for people with normal vision to remember things.  I don’t see well enough to use a smart phone and the address book in my 2007 model flip phone is as empty as Kim Kardashian’s head.  Sure, it would be nice to be able to store and then find phone numbers in there, but the font size isn’t large enough for me. 

From what I’ve observed, everyone stores everything on their phone now.  Nobody has to actually remember a number.  Nobody, that is, except people like me.  I was reminded of this last Sunday night.  A friend of mine I talk to every two or three weeks was surprised I remembered his number.  We were at my house and I told him I remember numbers I called frequently from several years ago.

“I still remember the number for J C Penny and I worked there back in the 80s,” I bragged.  “Well, and again briefly in the 90s when they built the new one.”  To prove it, I grabbed my cordless land-line phone (yes, I still have one of those) and called the number.  The recorded message was loud enough for both of us to hear with me holding the phone up.

Maybe I’m a savant.  I don’t know.  It’s always been easy for me to remember numbers, even before the vision loss.

These days, it’s easier for me to memorize a number than look  it up.  Most people could do the same thing if they tried.  They just don’t have to.

I’m leery of paying bills online.  But I’ve never heard of anyone hacking into a phone system, so I pay credit card bills that way.  I have quite a few toll-free numbers stored in my head.  I can enter the credit card number without looking, along with the PIN.  If they wouldjn’t change that stupid 3-digit code on the back each time they send a new card, I would make the effort to remember that too.

I remember the numbers to several friends, the renal specialist, ophthalmologist, chiropractor, oncologist, cable company, taxi, my parents (home and cell), the transit office, my landlord, bank (the main branch and the toll-free number to check my balance), my checking account number, and the number for the time and temperature. 

That last one I've had memorized since I was a kid.  On snow days, we called it over and over to make sure the temperature hadn't risen above freezing.

What?  You can’t do that?  Now it’s my turn to feel sorry for you.

There are several other numbers I remember most of, which gets me some interesting wrong places the first time or two I guess.

I’ve heard people say, “I lost my phone and it had all my numbers stored in it.”  You’ll never hear me say, “I lost my head and I had all my numbers stored in it.”  I do, but if I lose it, I won’t be able to talk.

Yesterday I activated a new card from a big box store.  There was a glitch and I had to enter it a second time.  After that, I had it memorized.  If I call it a few more times over the new couple of years, it’ll be stuck in there with the number for J C Penney.

Maybe all the memorization will keep my mind sharp well into old age.  Follow my blog for another 25 years and we’ll find out together!

Life In 3-D

I’ve had the glasses for two weeks now and I’m still getting used to them.  They are bifocal and the line drives me crazy at times.  I can’t use them at the computer but that’s OK.

The first week I had them, it seemed like inanimate objects jumped out at me.  Walking through the big room at the health club, the exercise machines lunged at me with their various handles, seats, and weight bars sticking out.  Anyone paying close attention would have thought I had a nervous condition.  That was when I realized what’s different now.

Now I have more depth perception.  I hadn’t noticed it had decreased.  Now that it’s back, I feel like I’m roaming around inside a 3-D movie.

The adjustment period comes as no surprise.  Adjustment periods have become a regular occurrence in my life.  It’s nice to see more detail on the ground when I’m walking.  It’s a relief to recognize faces and facial expressions at a greater distance.  I still don’t see well and it isn’t what it was as the beginning of 2003.  But it’s an improvement and I’ll take whatever I can get.

The glasses will do fine for now.  But, I’m still optimistic about what the future holds in medicine.  Will I one day have a retina transplant?  Will stem cells repair the damaged parts of my eyes?  Maybe it will be a bionic retina that restores my vision.  All of those things are being tested and perfected.  Maybe there’s a “dark horse candidate” I’m not aware of that will come to my rescue.

One thing is for certain.  This 3-D movie that has become my life will continue to have plot twists and surprises. 

Expanding My Horizons, Literally

On Friday I picked up my new pair of prescription glasses.  I’m gradually working up to wearing them all day.  There’s a noticeable difference in how well I can see with them on.

They’re tinted, which cuts down on glare inside as well as outside.  My eyes are just that sensitive to glare.  A couple of years ago, I started wearing sunglasses when using the computer.  I’ll probably have to continue doing that, because the new glasses are bifocal and the line is right where I look when I’m writing.  That’s OK, I use Zoomtext, a magnifier program, and would still need it even with the glasses.

Yes, even with correction, I still can’t see normal.  But, I can see better than I have in eight years.  I’m starting to walk with a little more confidence.  It’s easier to read numbers on my cell phone.  Who knows?  Maybe I’ll even get to start using the address book instead of keeping phone numbers in my head.  A little less clutter in there would be a good thing.

The little bubble of isolation I’ve lived in since 2003 has grown larger, encompassing people at a greater distance.  I can see faces, expressions, and recognize people that last week would have been beyond the veil of blurriness I’ve come to know and despise.  Social situations have sometimes been painful and awkward for me since my vision unexpectedly worsened in 2003.  It’s just harder to connect with people when you can’t make eye contact at a distance more than two or three feet.  It has made me feel alone in a crowd more often than I care to think about.

Several times today, I lowered the glasses just enough to peer over them, to measure the difference in what I can see.  My vision isn’t quite at the pre-2003 level, but it’s improved. 

So, this marks a new era in the never-ending, constantly-changing saga of Jim’s Vision.  Now, I’ll spend the next several weeks (or months) getting accustomed, once again, to a different level of eyesight.  This time, it’s an improvement, so the adjustment period will be full of positive discoveries and surprises.

I always love it when my world expands.

Next on the ‘to do’ list: shopping for a car and planning that cross-country road trip to the west coast.

Just kidding. J